Support forums take place in our private facebook groups where you can post your questions, support, ideas etc. A private group means whilst anyone can see the group and who's in it, only members see posts.
Our main facebook group is:
We also have an additional closed facebook group dedicated to adults with an EGID:
ausEE has an official livewire group for young people aged 12 to 20 years old.
Join Livewire here and once approved join ausEE’s group called The Official ausEE Group
Our virtual support groups are an opportunity to share and hear stories, chat and support each other. They are informal and we also have special guests from time to time. Come join us - we’d love to e-meet you!
Please register your email here to be invited to our next virtual support group.
Visit our events calendar for upcoming dates.
View tips for Zoom Online Etiquette from Connect Groups.
Carer Gateway - Carer Gateway is an Australian Government program providing free services and support for carers.
Caring Bridge - Free, personalised websites that connect family and friends during a serious health event
Strauss New Zealand - Facebook group for people in New Zealand diagnosed with Churg Strauss Syndrome - EGPA.
Gastritis Support Group - The Lower EGIDS (EoG, EoN, EoC) - International Facebook group for people who have been diagnosed with the Lower EGIDs.
My Time - Support for parents and carers of children with a disability.
NZ EoE Support - Facebook group for those diagnosed with, or supporting someone with, Eosinophilic Oesophagitis (EoE) in New Zealand.
Disease Kids Australia - Facebook group creating a safe space for families who are living or have lived the rare disease journey.
Disorder Community NZ - Facebook group for all people who live with a rare disorder and their whānau in New Zealand.
Siblings Australia Inc. - Siblings Australia is committed to improving the support available for siblings of children and adults with chronic conditions including disability, chronic illness and mental health issues.
The Nathan Centre - The Nathan Centre aims to relieve the suffering and distress caused by rare diseases for children aged 0-18 years and their families, so that they may live better lives.
Page last modified: 28 August, 2022