However, our most active support forums take place on our closed facebook groups where you can post your questions, support, ideas etc. A closed group means whilst anyone can see the group and who's in it. Only members see posts.
Our main facebook group is:
We also have an additional closed facebook group dedicated to adults with an EGID:
Are you a teenager or know a teenager with an EGID? ausEE has a secret facebook group just for teens with EGID! Please email email@example.com for a special link to join this group. A secret group means only members see the group, who's in it, and what members post. This group is monitored by two mothers of children with EGID.
There are many other facebook groups available worldwide for those with eosinophilic gastrointestinal disorders - just search 'eosinophilic' through facebook.
Here are some links to external Yahoo support groups that can also offer support and information via online forums:
Eosinophilgastro is for parents of children with EoE & EGID and has members worldwide
AussieNeocateKids is a support group for parents/carers of children of all ages on Neocate and other elemental formulas and has mainly Austrailan members
Other online support services are available from:
Caring Bridge - Free, personalised websites that connect family and friends during a serious health event