ausEE Inc.

a charity dedicated to improving lives affected by eosinophilic disorders

Just Diagnosed? What to do next

Getting diagnosed with an EGID can be overwhelming. But like many others, you most likely had a long path to get a diagnosis and can be somewhat relieved to be able to move forward.

To help you with the news:

  1. Be honest with your doctor. If you find the news overwhelming, then say so. If you feel panicked, shocked, stressed, anxious or confused, you may not be able to process the important information your doctor is giving you. If you're not ready to fully comprehend your diagnosis, take some time to deal with the emotions that may be getting in the way of understanding. This could mean asking your doctor for another appointment in a day or two to get the facts.
  2. Learn about your condition. This website is filled with information to help you along your journey. Check out our What is EGID? and FAQ pages and view our online Eosinophilic Disorders Explained brochure. 
  3. Know that you are not alone. ausEE offers in person support groups in most capital cities as well as a dedicated Facebook group and online forums. For young children we developed a children’s book “Meet Arabella” to help explain the journey.
  4. Plan to make lifestyle changes. Once you know the facts and are ready to make a decision about treatment, think about how your life may change. Will your diet change? Will you need to be on medicine? Visit our Living with EGID page for some handy information. 

Questions to ask your doctor

Take this list of questions with you to your next doctor's appointment and any others you may have. 

Knowledge is empowerment.

  1. What is the medical name for my condition? This is very important if you plan on researching your condition.
  2. If known, what is the cause of my condition?
  3. Do you recommend that I get a second opinion from another specialist?
  4. What is the treatment for my condition? Do I have a choice of treatments? If so, what are they?
  5. How long does the treatment last?
  6. Is this condition treatable with medication?
  7. What medication will I need?
  8. How long will I need to take it?
  9. What dietary changes will I need if any?
  10. Can you recommend resources so that I can better understand my condition?
  11. Other questions I want to ask:

 

Source: adapted from http://www.morethanmedication.com.au/

 

Page last modified: 29 May, 2013