ausEE Inc.

a charity dedicated to improving lives affected by eosinophilic disorders

Tube Feeding Blog

Message from Bella

Posted on November 29, 2011 at 3:40 AM

Hi, it’s me Bella again. I just wanted to say that now I have got the TT that I call it my button. Every single night I have to clean it, there is also a thing called granulation tissue that comes around it but Mum puts cream on it. I feel much better with my button then I used to feel and if you are like me you might want to ask your Mum for one. I like not having to drink my milk anymore and I don’t get sleepy at school anymore. Here is a picture of me and my pump.

Bella (now 8 years old)

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1 Comment

Reply cathy jesse
10:53 PM on February 28, 2012 
My son has EE and recently diagnosed with ankylosing spondylitis. we thought he would end up with tube feeding until i took him to childrens hospital LA. they are working with cedars sinai and feel these go together and are both auto immune. he started enbrel injections last july and his symptoms are almost gone/. he is going to cedars to see their to gastro doc and we will see if the eosinophils have been reduced as well/. this info is not in medical books or anywhere really; it will be soon I hope. i dont know how to get the word out? we saw dr reif today @ childrens LA. I sure hope this goes world wide and more kids get the same help.
good luck